pain

[MamaBearOf4]

pain pain go away so i can start walking again. to just take a shower or sit out side. to not fall and move freely. pain pain go away so my life can get back to normal. to walk and play with my kids. to cook and clean. i just want to move around pain pain go away so i can live again.

i did not have pain from surgery. but this is got me down. now this has to be some major pain if it got me like this. hopefully we will figure it out soon. i am tired. have not really slept in 2 days and can barely move with out pain now my legs is getting worse

 

[missdarmitage]

You are in my thoughts. I hope your dr's get this figured out soon and get you back up and moving.

 

[MamaBearOf4]

Well i am wheelchair bound now. They dont want me to fall anymore

 

[Cyndy]

I am sorry you are experiencing pain. I can relate to your little jingle. I have severe chronic pain caused by a rare condition called CRPS-Complex Regional Pain Syndrome. It took many years to get a correct diagnosis bc most doctors have never seen it. Don’t give up on your search for answers. Best wishes

 

[MamaBearOf4]

I am sorry you are experiencing pain. I can relate to your little jingle. I have severe chronic pain caused by a rare condition called CRPS-Complex Regional Pain Syndrome. It took many years to get a correct diagnosis bc most doctors have never seen it. Don’t give up on your search for answers. Best wishes

Thanks they wheel chair bound me until i get the strength on my legs back

 

[Brenda2010]

Thanks they wheel chair bound me until i get the strength on my legs back

I really hope they get answers with the spinal tap! When do you have that done?

 

[honeysgirl]

Praying for you MamaBear. No one wants to be in pain or in a wheelchair.

 

[Cyndy]

let us know what you find out after the spinal tap. Have you had an MRI done?

 

[MamaBearOf4]

I really hope they get answers with the spinal tap! When do you have that done?

They checking mri of the back and blood work first. But cant get there until the wheel chair comes through

 

[MamaBearOf4]

Praying for you MamaBear. No one wants to be in pain or in a wheelchair.

Thanks i dont like either one. But i am trying to keep my sense of humor through it. And trying my hardest to be positive still.

 

[MamaBearOf4]

let us know what you find out after the spinal tap. Have you had an MRI done?

Got the mri scheduled i just hope this wheel chair comes before that

 

[MamaBearOf4]

Mama, if you are having these problems and they seem to be getting worse, you may need to find a different team of doctors and medical professionals. And please don't take this the wrong way, but you really need to work with a mental health therapist. I'm not saying that you are imagining pain. I am sure your pain is real. But Falling Down without tripping on something is not a symptom of any disease I know of.

Right now I'm betting you are feeling a lack of love. You have done something to prove that you love yourself and my sense of you is that you are adamant that you are going to make it. But there is some kind of sabotage going on here.

So let me just say, I love you.

Thank diane i am going through therapy already. It was one of the things that they said i had to do when i did the psyc eval. Been in therapy way before the surgery infact. All my muscles feel so weak. And i try to push myself and that is when it gets worse. Right now my hands has gone weak to a point i can not stretch a hair tie to fix my hair. I cant even get off the toliet. I have had to call for lift assist so many times they know me so good now. They come in and see me already set up to be help. They even left a mega lifter here so i can be ready by the time they get here. I want to walk. I hate staying in one place. I hate being bound down. I hate not cooking. I hate being so scared of falling. I have never seen this. I never heard of this numbing of the whole body that i lose my strength. I am just trying to make it as good as i can.

 

[MamaBearOf4]

No wheelchair yet

 

[Brenda2010]

No wheelchair yet

Do you know what the holdup is??? You'd think that this would have been fast-tracked so you could make your appointments. Grr... The whole system is pissing me off!

 

[AnnieLuv]

I am not trying to diagnose you, Mama. But it kind of sounds like multiple sclerosis, which I was tested for once. Are you saying that you can't get your wheelchair through the door or are you saying that you don't have the wheelchair yet? I'm a little confused about that.

I was thinking the same thing, I just didn't want to say it. I have a colleague I've worked with for years and known during her diagnosis with ms. She had the leg problems first, weakness, being unstable and falling. It sounds so familiar. She had the gastric bypass about 4 years ago so that she could better handle the ms symptoms. I sincerely hope for a resolution for you Mama bear! You are trying so hard to get healthy and you deserve to be healthy!

 

[MamaBearOf4]

Do you know what the holdup is??? You'd think that this would have been fast-tracked so you could make your appointments. Grr... The whole system is pissing me off!

Me too. Because now i am at the hospital again with another fall but i think i may of broke a bone in my foot

 

[MamaBearOf4]

I was thinking the same thing, I just didn't want to say it. I have a colleague I've worked with for years and known during her diagnosis with ms. She had the leg problems first, weakness, being unstable and falling. It sounds so familiar. She had the gastric bypass about 4 years ago so that she could better handle the ms symptoms. I sincerely hope for a resolution for you Mama bear! You are trying so hard to get healthy and you deserve to be healthy!

Thanks the mri is set up for Jan 11th. And we will see.

 

[Brenda2010]

Thanks the mri is set up for Jan 11th. And we will see.

You'd think that they'd do the MRI while you're in the hospital. They shouldn't be releasing you until they have answers!!!

 

[MamaBearOf4]

An MRI cannot detect multiple sclerosis. That is only diagnosed by spinal tap. Now, I don't want to think that is the diagnosis but what the hell is this hold up? It takes no time at all to get a spinal tap. Why are they going for the MRI because they think you have a brain tumor? If that was the case they should be moving very quickly . I mean where on your body are they going to do an MRI. In the medical world MRIs cost a fortune . It seems to me that they are more interested in the profit than in the diagnosis. I think your doctor is jerking you around and I think you should ask for a second opinion immediately.

Also, how is your vision? Have you noticed any changes for the worse?

It is very upsetting to hear about things that are happening to you and not being able to do anything about it. But I should think that you would be ten times more upset that this is happening to you at all. Why aren't you being more aggressive with the people who are telling you nothing? It is not normal to fall unless you trip over something. If you fall for no reason, there is a serious cause behind it.

You need to demand Better diagnostic techniques right now. And don't let them use Christmas as the excuse. I am seething, Furious, that this is happening to you and that nobody is doing anything to find out what it is. This is not the way medicine is supposed to be practiced.

If This Were happening to one of your kids would you be willing to wait so patiently for the doctors to get around to figuring out what was wrong? I don't think so. You should be treating your own self with as much concern as you would treat your children. And I would never allow them to send me home from the hospital saying there's nothing wrong with me after I had fallen for no reason at all.

They keeping me now. They are running so many test it will be figured out

 

[Brenda2010]

They keeping me now. They are running so many test it will be figured out

GREAT!!! Hate for you to be in the hospital but it's much worse going home without a diagnosis!!! Good luck and please keep us posted when you can.